Chronic Illness

As many of you might have seen “disabled” “disability” “accessibility” etc are among the words being purged by the Trump admin.

This means no new grant proposals for research for example can contain these words or it won’t get funded. And that government websites (like NASA and other agencies) are being forced to remove these words.

This is a very scary time for us all, and ontop of everything, there seems to be very little recognition of the harms Trump is doing to disabled people in the media or in activist groups and such.

I know how scary and isolating this can feel. I’m putting this thread up so people can vent and share.

❤️❤️❤️

This is not only hurtful and invalidating, but it also has serious consequences for our wellbeing and safety. By removing these words, the administration is essentially saying that disability is not a valid or important aspect of human experience. If that is their view, the who the fuck knows what fucked up shit they will try next. I’m scared.

New Community, If you want to be added as mod, please ask

1y 11mon ago by lemmy.world/u/mecfs in chronicillness
2592

I used to have ME/CFS

3mon 3d ago by swg-empire.de/u/bjoern_tantau in chronicillness from swg-empire.de
6023

Funderful

3mon 11d ago by piefed.zip/u/FundMECFS in chronicillness from media.piefed.zip
3824

More Funding for Psychosomatic ME Research in Norway, While Promising Biomedical Trials Go Unfunded

3mon 26d ago by swg-empire.de/u/bjoern_tantau in chronicillness from www.change.org
815

Long Covid is still here. I know – my life came to a stop because of it

3mon 29d ago by sh.itjust.works/u/AcidiclyBasicGlitch in chronicillness from www.theguardian.com
4446

Stonebird books on severe ME and caring now available to download for free

3mon 14h ago by lemmy.world/u/FarraigePlaisteach in chronicillness from stonebird.co.uk
1107

Why scrolling on your phone is ok when you're chronically ill

4mon 6d ago by swg-empire.de/u/bjoern_tantau in chronicillness from youtube.com
228

You really are

5mon 3d ago by swg-empire.de/u/bjoern_tantau in chronicillness from piefed.cdn.blahaj.zone
33010

Venting about chronic pain

5mon 15d ago by sh.itjust.works/u/replicator in chronicillness
23711

Long COVID involves activation of proinflammatory and immune exhaustion pathways

5mon 29d ago by sh.itjust.works/u/AcidiclyBasicGlitch in chronicillness from www.nature.com
281012

Memory Issues

6mon 6d ago by anarchist.nexus/u/FundMECFS in chronicillness from anarchist.nexus
2012013

Undiagnosed neurological (and other?) issues

6mon 29d ago by sh.itjust.works/u/shadowedcross in chronicillness
14815

If you wouldn’t say it to someone with a struggle you can see… then please don’t say it to someone

7mon 13d ago by swg-empire.de/u/bjoern_tantau in chronicillness from youtube.com
11416

You're Asking Me?

7mon 13h ago by sh.itjust.works/u/Bring_Back_Buggy_Whips in chronicillness from sh.itjust.works
54017

What's your silly story about your illness?

7mon 3d ago by lemmy.dbzer0.com/u/Tippon in chronicillness
12518

It was too good to be true

7mon 3d ago by swg-empire.de/u/bjoern_tantau in chronicillness from swg-empire.de
73219

Chronic Pain

8mon 7d ago by lemmy.world/u/salty_chief in chronicillness
16420

What are your hobbies and ways to wind down?

8mon 20d ago by lemmy.world/u/Droggelbecher in chronicillness
15821

Orgesticulanismus

8mon 2d ago by sh.itjust.works/u/replicator in chronicillness from sh.itjust.works
6022

Post deleted by user

9mon 10d ago by retrolemmy.com/u/VampiresOfDecay in chronicillness
28623

I'd take a remote controlled robot to smash in my stead

9mon 12d ago by swg-empire.de/u/bjoern_tantau in chronicillness from swg-empire.de
45124

Do antidepressants ease chronic pain?

9mon 24d ago by piefed.social/u/misk in chronicillness from www.dw.com
11225

post deleted by user

9mon 26d ago by retrolemmy.com/u/VampiresOfDecay in chronicillness
25426

don't get too streptococci

9mon 26d ago by swg-empire.de/u/bjoern_tantau in chronicillness from mander.xyz
45227

Doug Savage - Savage Chickens

9mon 2d ago by lemmy.dbzer0.com/u/miss_demeanour in chronicillness from lemmy.dbzer0.com
25028

Living With Fibromyalgia

10mon 5d ago by sh.itjust.works/u/replicator in chronicillness from sh.itjust.works
2754529

Trapped in a pain prison

10mon 11d ago by lemmy.world/u/salty_chief in chronicillness
245330
11131

anime_irl

10mon 16d ago by sopuli.xyz/u/BruceLee in chronicillness from ani.social
16032

Good ol' Days

10mon 22d ago by quokk.au/u/FundMECFS in chronicillness from quokk.au
98033

Gotta remember that one

10mon 23d ago by swg-empire.de/u/bjoern_tantau in chronicillness from swg-empire.de
2693234

How it feels to have a chronic illness

10mon 24d ago by quokk.au/u/FundMECFS in chronicillness from quokk.au
105035

me_irl

11mon 6d ago by lemmy.blahaj.zone/u/FundMECFSResearch in chronicillness from lemmy.blahaj.zone
4434036

I want to dance!

11mon 19d ago by swg-empire.de/u/bjoern_tantau in chronicillness
22337

What things do you do to pull yourself out of a negative spiral?

11mon 20d ago by mander.xyz/u/thicksliceham in chronicillness
301638

Hell for Chronically ill People

11mon 21d ago by lemmy.blahaj.zone/u/FundMECFSResearch in chronicillness from lemmy.blahaj.zone
126939

Amen

11mon 26d ago by lemmy.blahaj.zone/u/FundMECFSResearch in chronicillness from lemmy.blahaj.zone
6737140

Chronic Illness Life ✨✨

11mon 3d ago by lemmy.blahaj.zone/u/FundMECFSResearch in chronicillness from lemmy.blahaj.zone
133441

When someone asks how you're doing

1y 6d ago by lemmy.blahaj.zone/u/FundMECFSResearch in chronicillness from lemmy.blahaj.zone
65042

"You sure you just don't want to work or something"

1y 10d ago by lemmy.blahaj.zone/u/FundMECFSResearch in chronicillness from lemmy.blahaj.zone
3602343

Thrashing Thursday

1y 10d ago by swg-empire.de/u/bjoern_tantau in chronicillness
9044

Does lying in bed make your eyes go bad?

1y 14d ago by swg-empire.de/u/bjoern_tantau in chronicillness
181845

I need this

1y 16d ago by swg-empire.de/u/bjoern_tantau in chronicillness from feddit.org
72046

You just need to lose some weight

1y 2d ago by swg-empire.de/u/bjoern_tantau in chronicillness from swg-empire.de
152347

no way rule

1y 2d ago by lemmy.blahaj.zone/u/princessnorah in chronicillness from files.catbox.moe
17248

Thursday Triumphs

1y 1mon ago by swg-empire.de/u/bjoern_tantau in chronicillness
9049

Not having answers and feeling scared

1y 1mon ago by lemmy.ca/u/tentaclenumber3 in chronicillness
20350